When your child has a chronic or complex health condition, you become a caregiver, and you have to learn a lot … fast. Check out these books to get oriented to the new job of managing your child’s care and your wellbeing.
In-home nursing can be a lifeline for parents who are juggling careers, family and the care of a medically fragile child; however, opening your home to nursing can also come with its own set of challenges.
Home Care CEO will help you manage the tasks related to in-home care and find excellent providers who help the child and the family.
Overcoming challenges to get the best outcomes for your child with a disability is about more than lists of tasks to complete; it also requires dealing with the emotions that challenge us. Inspired by their experiences of raising children with disabilities, three African American moms—who are also advocates—share how they deal with both the positive and the difficult emotions involved in the parenting journey.
Upcoming publication
Dr. Maya Angelou once said, There is no greater agony than bearing an untold story inside you.”
If you’re a black woman with a story to tell about healthcare bias or medical harm, now is the time to share it.
https://supersafekidsbooks.com/call-for-submissions/
Managing a complex condition
For kids with chronic conditions, safety means understanding what needs to be done and the best ways to do it. Families can support safety and health by working closely with healthcare teams to get the latest information.
Learning
Understanding your child’s condition is important, even if you don’t have a formal diagnosis. Your child’s challenges, needs and strengths guide the process of setting goals.
Collaborating
Working as part of your child’s healthcare team means communicating your child’s goals, challenges, and needs so everyone is on the same page about the care your child needs.
Getting Organized
Complex care is…complex. That means you probably have to rely on more than your memory to keep things straight. A binder or accordion file dedicated to medical care can help.
Madvocator Educational and Healthcare Advocacy Training 