For those of us whose children require in-home nursing, agencies are often the first resource suggested to us by hospital personnel and discharge nurses. Because they have access to multiple nurses, agencies can often respond to the need for care quickly. Many hospitals suggest that families use agencies instead of independent nurses because they assume … Continue reading Three signs that you need to fire your child’s home nursing agency
Killing the Unicorn: There Is No Perfection in Parenting
We all know a supermom. She is organized and efficient. Riding atop her unicorn with her hair blowing in the wind, she bakes cupcakes with a smile while teaching the finer points of multiplication to her well-mannered children. The concept of supermom can shame us and leave us feeling inadequate, even when we are doing our best.
Managing Change with Your Medically Fragile Child
The following was published as part of my “Teachable Moments” blog series for ProMedica HealthConnect. In science, change is inevitable and drastic. Matter – the stuff we and our world are made of – goes through changes all the time. With shifts in pressure and temperature, solids change to liquids, and liquids change to gas. … Continue reading Managing Change with Your Medically Fragile Child
Dear Tracheostomy: It’s Over.
Dear Tracheostomy,
When we met 1275 days ago, it was on one of the worst days of my life.
A Life with Few Answers
Congenital fiber-type disproportion myopathy is rare. In fact, it is so rare that there are no estimates on just how rare it is. A neuromuscular condition, it affects the muscle fibers and causes weakness that can affect eating, breathing, mobility and posture. Besides my sister and my son, I have never met another person with … Continue reading A Life with Few Answers
Madvocator Educational and Healthcare Advocacy Training 