At two months old, my son Richie received his trach, and he was ventilator dependent until he was 18 months old. Gradually, he was able to tolerate a speaking valve and capping, all working toward decannulation. It seemed to us that things would be easier once he no longer had a trach, but it isn’t quite that simple.
Parent or Advocate? Wearing Both Hats for the Best Outcomes
Both parenting and advocacy focus on creating the best possible future: for our children to thrive and to be accepted and understood. It can be a heavy load, and it’s easy to mix up which role we need and when.
Got a daredevil on wheels? Power Wheelchair Safety for Kids can help.
Power Wheelchair Safety for Kids is the first book written for children and families to understand basic power wheelchair safety.
Central Line Safety for Kids video introduction
Here’s an introduction to Central Line Safety for Kids and why it can helps kids stay healthy in the hospital.
Parent Leadership in In-Home Care
Parents are required to take on a new role when it comes to in-home nursing, the role of a CEO guiding the team toward a mission of excellent care.
Madvocator Educational and Healthcare Advocacy Training 